Life with spina bifida.

Sirenomelia with spina bifida.

Sirenomelia is an exceptionally rare cogenital malformation characterized by a single fused lower limb. This deformity is variably known as symmelia, sympodia monopodia, sympus and due to its resemblance to the mermaid of Greek and Roman mythology popularly also known as mermaid baby. Sirenomelia has prevalence of 1.5 4.2 cases per 100,000 births(l). About 300 cases of this lethal anomaly have ...

Life satisfaction of young adults with spina bifida.

This study concerns life satisfaction and its determinants in Dutch young adults with spina bifida (SB). Data on life satisfaction (Life Satisfaction Questionnaire [LiSat-9]) were related to hydrocephalus, lesion level, disabilities, and demographic variables. In total, 179 young adults with SB participated (41% male, age range 16-25y; 79% SB aperta, 67% hydrocephalus [HC], 39% wheelchair-depen...

Quality of life for families with spina bifida in Kenya.

Spina bifida (SB) affects children worldwide. Studies from developed nations have explored the impact of SB on the quality of life of children and their parents. However, there are no such studies available from developing countries. We have therefore undertaken to document the impact of the disability on the families of affected children in Kenya. A questionnaire was administered to 40 mothers...

Spina Bifida (Myelomeningocele)

Depressive symptoms in adults with spina bifida.

OBJECTIVE To examine the prevalence of depressive symptoms in adults with spina bifida and identify contributing factors for depressive symptomatology. METHOD Retrospective Cohort Study. Data collection was conducted at a regional adult spina bifida clinic. A total of 190 charts from adult patients with spina bifida were included. The main outcome measures were the Beck Depression Inventory-I...